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2024 International Exstrophy Conference Videos

The 2024 International Exstrophy Conference was hosted by Children’s WI.

A special thank you to Ryan Hutto with Big Heart Productions, LLC for capturing this content and making it available to our community.

Opening Remarks

Presented by John Kryger, MD – Children’s WI

Welcome & Updates

Presented by: Pamela Artigas, Executive Director – A-BE-C

Patient Stories & Courage to Shine Winner

Interviews with MIBEC/BE families & Courage to Shine Winner , Rachel Althizer

Youth Rally: Encourage Self-Confidence and Independent Living

Presented by April Gimlin, A-BE-C Board Member & Youth Rally Founder

Philanthropy & Hudson’s Story

Presented by Stacey Bobber – Exstrophy Parent & Founder of Birdie’s for Bobbers

Patient Panel

Interactive session with those living or caring for someone with Exstrophy

MIBEC Philosophy & Approach

Presented by Dr. John Kryger – Children’s WI, MIBEC

Can Repaired Bladder Exstrophy Patients Void Long Term?

Presented by Dr. Travis Groth – Children’s WI

Creation of a Dedicated Anesthesia Exstrophy Team: Challenges and Lessons Learned

Presented by Kristin Labovsky, MD – Children’s WI

Presentation of the Richard Grady Humanitarian Award

Presented to Dr. Joao Pippi Salle

MIBEC 8 Year Outcomes

Presented by Dana Weiss, MD – Children’s Philadelphia, MIBEC MD

Global Solutions for a Global Problem

Presented by Aseem R Shukla, MD, FAAP Children’s Philadelphia, MIBEC MD

Key Differences Between Cloacal Exstrophy and Classic Bladder Exstrophy

Presented by Ted Lee, MD – Boston’s Children’s, MIBEC MD

The Case for Normal Childhood: How Movement and Activities Can Support Bladder Exstrophy Success

Presented by Elizabeth Roth, MD – Children’s WI, MIBEC MD

Provider Panel

Dr. Michael Mitchell, Dr. Elizabeth Roth, Dr. Travis Groth, Dr. Dana Weiss, Dr. Assem Shukla, Dr. Ted Lee, Dr. Joao Pippi Salle