One of the most memorable moments of the 2026 A-BE-C Annual Conference in Los Angeles was celebrating Thomas Vincent, recipient of this year’s Courage to Shine Award. The award recognizes individuals who embody resilience, inspire others, and make a meaningful
From Patient to Researcher: A Life Shaped by Bladder Exstrophy “I stand before you today not as an Executive Director, but as a mother.” — Pamela Artigas Those were the words that changed the tone of the room during a recent
A-BE-C has committed to a five year initiative designed to treat under-served children and adults in resource poor countries and extend access to surgical interventions and other treatments through the training of physicians in Uganda. https://www.youtube.com/watch?v=NttC4_3ClmA
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As 2025 draws to a close, the Association for the Bladder Exstrophy Community (A-BE-C) reflects on a year defined by expanded global reach, strengthened resources, and meaningful community connections. From international collaboration to new tools for patients and families, the past year underscored the importance of empowering individuals through trusted information and supportive networks.
The Association for the Bladder Exstrophy Community (A-BE-C) recently joined international support organizations from around the world for the first-ever Global Congress on Advocacy and Community Collaboration—a landmark gathering dedicated to improving care, awareness, and connection for individuals and families affected by bladder exstrophy.