When seventeen-month-old Annette was first born with bladder exstrophy, her mother assumed her condition was fatal. “I did not understand the whole situation,” she says. “I had not seen or heard about this condition before, so I thought I would
Dr. Gearhart provides details about what makes a successful primary exstrophy closure, why some closures fail, how to prevent failed closures, the types of failures and the treatment of failed closures.
Dr. Paul Merguerian discusses the management and long term outcomes of children with bladder exstrophy and epispadias, the initial management of pelvic osteotomies, and the goals of long-term management.
Catheritization or “cathing” is a fact of life for many bladder exstrophy patients. The topic triggers many questions and concerns for parents and patients, which is why A-BE-C will be featuring it in the coming weeks. To start, you can
“…a five-year-old abandoned Ugandan girl, born with her bladder outside her body, will undergo surgery with the help of funds collected by a seven-year-old by from the USA who felt the same pain as he was too suffering with the
[print-me target=”.main-content” do_not_print=”.paging”] [lead]You can help bladder exstrophy patient Mick Hullinger fund surgeries for other children around the world with bladder exstrophy by making a contribution.[/lead] [button url=”https://secure.qgiv.com/for/2fri” style=”xsmall|small|normal”]Contribute to Mick’s Surgery Fund[/button] Seven-year-old bladder exstrophy patient Mick Hullinger is putting bladder