Mission

Long-Term Health Monitoring

Global Community. Beyond Surgery. For Life.

To act as the bridge connecting our global community to medical excellence and providing comprehensive support through education, advocacy, and research—ensuring every individual has the resources and opportunity to thrive.

Great Lakes Camp Out | Bladder Exstrophy

Our Vision

A world where every individual born with bladder exstrophy has access to safe, effective care and the opportunity to live a full and meaningful life.

Making A Difference | Bladder Exstrophy

Making a Difference

A-BE-C is working to improve outcomes and expand access to care through:

Our History

Founded in 1989 by Dr. Jeffrey and Kathleen Niezgoda after the birth of their son with bladder exstrophy, A-BE-C was created to fill a critical gap in resources and support for families. What began as a grassroots effort has grown into a global community connecting and empowering individuals and families affected by the exstrophy-epispadias complex.
Newborn | Bladder Exstrophy

We Navigate the Journey Together

Because a diagnosis of bladder exstrophy shouldn’t mean a life of isolation or ‘just getting through’ surgery. We believe that every individual, regardless of where they live, deserves access to world-class care and a supportive community who understands their journey. We exist to ensure that medical excellence is matched by compassionate, lifelong guidance—so that every person has the opportunity to thrive at every stage of life.

Be Part of the Change

Together, we can expand access to care and improve lives around the world.
Want to learn more about the organization behind your donation? Explore A-BE-C’s profile on Candid for a more complete look at our mission, programs, leadership, financials, IRS Form 990s, and the impact your support helps make possible.

Help Support the Bladder Exstrophy Community

Your donation helps provide care, education, and life-changing support for families worldwide.