Our Why

Every child born with bladder exstrophy deserves access to safe, timely, and effective care.

But around the world, that is not always the reality. A-BE-C exists to change that.

The Reality

Bladder exstrophy is a rare and complex condition that requires specialized surgical care and long-term support.

In many parts of the world:

For many, this leads to a lifetime of physical challenges, social isolation, and limited opportunity.

Why This Matters

Without access to proper care, children living with bladder exstrophy often face:

These challenges are preventable with the right care, resources, and support.

Ongoing Challenges

Even when surgery is available, patients in resource-limited settings often face additional barriers:

These gaps can significantly impact long-term outcomes.

Making a Difference

A-BE-C is working to improve outcomes and expand access to care through:

One example is the annual international workshop, where healthcare professionals from around the world receive hands-on training in advanced techniques to treat bladder exstrophy.

Long-Term Health Monitoring

Our Mission

To provide education, support, and access to care for individuals and families affected by bladder exstrophy, while advancing treatment and outcomes worldwide.

Great Lakes Camp Out | Bladder Exstrophy

Our Vision

A world where every individual born with bladder exstrophy has access to safe, effective care and the opportunity to live a full and meaningful life.

Newborn | Bladder Exstrophy

Why We Continue This Work

Behind every statistic is a child, a family, and a future.

This work is about more than treatment, it’s about dignity, opportunity, and the ability to live without limits.

Be Part of the Change

Together, we can expand access to care and improve lives around the world.

Help Support the Bladder Exstrophy Community

Your donation helps provide care, education, and life-changing support for families worldwide.