Every child born with bladder exstrophy deserves access to safe, timely, and effective care.
But around the world, that is not always the reality. A-BE-C exists to change that.
The Reality
Bladder exstrophy is a rare and complex condition that requires specialized surgical care and long-term support.
In many parts of the world:
children are left untreated
surgical repairs may be unsuccessful
access to trained specialists is limited
families lack the resources and support they need
For many, this leads to a lifetime of physical challenges, social isolation, and limited opportunity.
Why This Matters
Without access to proper care, children living with bladder exstrophy often face:
chronic health complications
barriers to education
stigma and social isolation
reduced quality of life
These challenges are preventable with the right care, resources, and support.
Ongoing Challenges
Even when surgery is available, patients in resource-limited settings often face additional barriers:
limited access to trained healthcare providers
lack of postoperative care and follow-up
insufficient medical infrastructure
limited access to continence supplies
These gaps can significantly impact long-term outcomes.
Making a Difference
A-BE-C is working to improve outcomes and expand access to care through:
global surgical collaborations
training and education for healthcare providers
support for patients and families
development of practical solutions like BE-DRY
One example is the annual international workshop, where healthcare professionals from around the world receive hands-on training in advanced techniques to treat bladder exstrophy.
Our Mission
To provide education, support, and access to care for individuals and families affected by bladder exstrophy, while advancing treatment and outcomes worldwide.
Our Vision
A world where every individual born with bladder exstrophy has access to safe, effective care and the opportunity to live a full and meaningful life.
Why We Continue This Work
Behind every statistic is a child, a family, and a future.
This work is about more than treatment, it’s about dignity, opportunity, and the ability to live without limits.
Be Part of the Change
Together, we can expand access to care and improve lives around the world.