Webinars

Bladder Matter!

How the bladder works and why it's important for bladder exstrophy.

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Webinars

2020 Back to School Virtual Conference!

A-BE-C recently held its first virtual conference via Zoom! Dr. Elizabeth R. Mueller, Loyola University Chicago Stritch School of Medicine, kicked off the event by discussing research findings that suggest […]

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Webinars

How to Talk About Bladder Exstrophy

While advances have been made in surgical approaches to the management of exstrophy, less is known about the psychosocial development and adjustment particularly as children and their family’s progress to […]

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Webinars

Urinary Continence with Bladder Exstrophy

Dr. Tony Khoury Chief of Pediatric Urology at both Children’s Hospital of Orange County (CHOC) Children’s Urology Center and the University of California-Irvine Medical Center, provides this helpful overview of […]

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Webinars

Bladder Cancer: Facts for Bladder Exstrophy Patients

Understanding the facts about the risks of bladder cancer and how to reduce them are important topics for bladder exstrophy patients and their families. As part of Bladder Health Month, […]

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Webinars

Urinary Tract Infections (UTIs) in Bladder Exstrophy Patients

People with bladder exstrophy are at greater risk for developing urinary tract infections. (UTIs). As part of Bladder Health Month, Dr. Ranjiv Mathews, Director of Pediatric Urology and Professor at SIU […]

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Webinars

Failed Primary Exstrophy Closure Webinar Recording

Failed Primary Exstrophy Closure: Challenges, Management & PreventionFeaturing John. P. Gearhart, MD, Director Pediatric Urology at Johns Hopkins Children’s Center. Recorded on May 25, 2016 with a live audience. Hosted by Dr. Jeffrey […]

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Webinars

Long Term Management of Bladder Exstrophy

Dr. Paul Merguerian discusses the management and long term outcomes of children with bladder exstrophy and epispadias, the initial management of pelvic osteotomies, and the goals of long-term management. Recorded […]

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Webinars

Exploring the Gene Mutation Discovery

Dr. Heiko Reutter is a world renown researcher in the field of pediatrics and human genetics. In this webinar Dr. Reutter will share his research and insights on the discovery of […]

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Webinars

Preparing your Child for Surgery

Part IIncludes: the role of constipation and pelvic floor goals Part 2Includes: Developmental readiness, management, and a recap of the presentation Marlo Eldridge, MD Dr. Marlo Eldridge has been working […]

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Bladder exstrophy is complex. It is normal to feel overwhelmed and even have a sense of helplessness when searching for evaluation and treatment. Making information available and understandable to those living with bladder exstrophy is the aim of this ongoing series of webinars. Each session features a presentation and live question and answer session. Look for new topics every month or two and enjoy recordings to all sessions by joining the A-BE-C mailing list.