Access trusted bladder exstrophy guidance, expert insights, and community support—anytime, anywhere.
The We the BE app is a mobile resource designed to support individuals and families affected by bladder exstrophy at every stage of the journey.
Developed in collaboration with OKC Kids Urology, A-BE-C, and supported by The Black Foundation, the app brings essential resources together in one place making it easier to access guidance and support anytime, anywhere.
Living with bladder exstrophy often means navigating new questions at different stages of life. The We the BE app provides convenient, on-the-go access to important information and resources, helping families and individuals feel more informed and supported.
Whether you are newly diagnosed or managing long-term care, the app is designed to meet you where you are.
The We the BE app is designed for:
Guidance for different stages of diagnosis, treatment, and care
FAQs Answers to common questions about bladder exstrophy
Support for emotional wellbeing and life transitions
Overview of medical care, procedures, and long-term management
Educational content from medical experts and community members
Helpful resources and tools for daily life
Connect with others and share experiences
Access to specialists and additional guidance
The We the BE app was developed through a collaboration between medical experts and the bladder exstrophy community. This ensures that the content reflects both clinical expertise and real-life experience.
A-B-E-C is proud to support tools that improve access to information and strengthen connections across the community.
Families and individuals use the app to:
Bladder exstrophy is a rare condition, and finding reliable information and support can be challenging. The We the BE app helps bring together:
You may also find these resources helpful:
The We the BE app was created to make support more accessible. Whether you are looking for information, reassurance, or connection, the app is designed to help you feel more prepared and supported.
