You Are Part of a Community
No one has to navigate bladder exstrophy alone. Through shared experiences, education, and connection, the bladder exstrophy community continues to support individuals and families around the world.
Advocacy is a critical part of improving care, awareness, and outcomes for individuals affected by bladder exstrophy.
A-BE-C works alongside leading medical organizations, global health initiatives, and advocacy groups to strengthen education, expand access to care, and support patients and families around the world.
Through collaboration and advocacy, A-BE-C helps:
These partnerships play an important role in advancing both medical care and quality of life.
Medical & Professional Organizations
Advocacy & Global Health Organizations
Patient Support & Community Organizations
Bladder exstrophy is a rare condition, and awareness remains limited in many parts of the world.
Advocacy helps ensure that:
Advocacy is not limited to organizations, individuals and families play an important role as well.
You can help by:
No one has to navigate bladder exstrophy alone. Through shared experiences, education, and connection, the bladder exstrophy community continues to support individuals and families around the world.