We are pleased to announce that Janet Gibson and Joseph B. Redman have joined as the newest members of Association for the Bladder Exstrophy Community’s board of directors. Before joining the board, both were already committed volunteers with a passion
Dr. Richard Grady saw medicine as part science, part art. It was the cornerstone of his medical practice and his extensive humanitarian work. He embodied this philosophy. On April 25th, after a three-year battle with brain cancer, Dr. Grady passed away.
The pediatric urology team at Johns Hopkins is looking for bladder exstrophy patients to participate in a clinical trial. Participants must have a history of bladder exstrophy closure and failed bladder neck reconstruction. John P. Gearhart M.D. and Heather N.
In 2015, a small group of three families came together to found the Texas Bladder Exstrophy Group. We are an online support group open to families in the Texas/Oklahoma area that are affected by Bladder Exstrophy. In the past year
Among the nearly 100 children who received checkups and medical procedures for bladder exstrophy at the operative workshop in India in January 2017, more than a dozen were undergoing complex corrective surgeries. For those children and their families, surgery marks the
The 9th annual Operative Workshop on Exstrophy and Epispadias Complex got underway just after the first of the year in Ahmedabad, India. Nearly 100 exstrophy patients received treatment from an international team of experts. Patients and their families made journeys from all over