The children receiving care in India are grateful for more than just treatment for their bladder exstrophy. They are also the proud owners of their very own “hobo-bags.” Each has been thoughtfully made and filled by A-BE-C super-volunteer Dawna Boudot, a 17-year old from Ohio. “The
We are pleased to announce that three mental health providers have joined the advisory board of the Association for the Bladder Exstrophy Community (A-BE-C). All three specialize in pediatric urology and are active in the bladder and cloacal exstrophy community.
This is an exciting time for A-BE-C’s Global Care Initiative! Read the full announcement about the Annette’s and Sabyr’s surgeries at Sidra Medical and Research Center in Qatar that are a result of an international collaboration between A-BE-C and Qatar Foundation for Education,
Executive Director Pamela Block was invited to represent the Association for the Bladder Exstrophy Community at the 2016 Bladder Health Alliance Roundtable in Lithium, Maryland. The October 6th event was hosted by the Urology Care Foundation. It brought together more
Sabyr’s family hopes that one day their son will be able to sit up on his own and maybe, if he is lucky, he will even walk. But for now, the family is looking forward to October 19th, when the
When seventeen-month-old Annette was first born with bladder exstrophy, her mother assumed her condition was fatal. “I did not understand the whole situation,” she says. “I had not seen or heard about this condition before, so I thought I would