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2025 International Exstrophy Conference Videos

The 2025 Annual Exstrophy Conference was held in Boston, MA and proudly hosted in conjunction with Boston Children’s.

A special thank you to Ryan Hutto with Big Heart Productions, LLC for once again making this content available to our community.

 

Opening Remarks, ABEC Update & Lily Artigas Award

Presented by Pamela Artigas & Dr. Evalynn Vasquez

Adult Patient Advisory Council Update

Presented by: Kim Allen, A-BE-C Adult Patient Advisory Board Chair

Beyond Medicine, Ensuring Patients and Families Thrive Through Transitions

Presented by Emily Haddad, LCSW, MBE

Youth Rally

Presented by Jada Sheeler & Jessica Stewart

Breakout Q&A

Emily Haddad, Kim Allen, Jada Sheeler, Jessica Stewart

Patient Panel

Interactive session with individuals living with exstrophy

Courage to Shine Award Presentation

Presented by Tom Exler | Presented to George Hunt III

Mental Health Surgical Readiness

Presented by Jenn Hansen-Moore, PhD, ABPP & Lillian Hayes, PhD, ABPP

Pelvic Floor Physical Therapy

Presented by Megan Dakhlian, PT, DPT

Sexual Health Panel

Lillian Hayes, PhD, ABPP; Jenn Hansen-Moore, PhD, ABPP; Ted Lee, MD; Megan Dakhlian, PT, DPT

Fertility and Reproductive Health

Presented by Daniel Pelzman, MD & Ted Lee, MD

Unique Risks in Pregnancy with Complex Bladder Reconstruction

Presented by Jennifer Johnson, MD

Critical Need to Standardize Follow Up Care

Presented by Juan Osorio Iriarte, MD

Call for Standardized Definition of Continence

Presented by Pedro-Jose Lopez, MD

Long Term Follow up of Kidney Stones in ECC or Mitro

Presented by Anna Bujons, MD, PhD, FEAPU

Provider Panel Discussion

Juan Osorio Iriarte, MD; Pedro-Jose Lopez, MD; Anna Bujons, MD, PhD, FEAPU

Kelly Procedure Panel

Presented by Aseem Shukla, MD; John Kryger, MD; Evalynn Vasquez, MD; Dana Weiss, MD; Pedro-Jose Lopez, MD

Empowering our Community to Navigate Emergency Situations

Empowering our Community to Navigate Emergency Situations