Finding experienced care as an adult with bladder exstrophy can be challenging but you are not alone. This directory is designed to help connect adults with urology providers who have experience treating bladder exstrophy, epispadias, cloacal exstrophy, and related conditions.
This listing represents the most up-to-date information gathered by A-BE-C on providers who treat adults with bladder exstrophy and related conditions. Our goal is to make it easier for patients to find knowledgeable providers and continue receiving appropriate care into adulthood.
Because adult care for bladder exstrophy is a specialized area, finding the right provider can take time. This resource is here to support that process.
Use the directory below to find providers by state or region.
Each listing includes urologists and specialists who have experience working with adult patients with bladder exstrophy and related conditions.
TELEHEALTH OPTIONS:
Brendan Frainey, MD (See TENNESSEE for full listing)
TELEHEALTH OPTIONS:
Judith Hagedorn, MD, MHS, FACS (See WASHINGTON for full listing)
Bridget L. Findlay, MD
Mayo Clinic
Phoenix, AZ
(480) 301-8484
Conditions Treated (not intended to be a complete list):
Lindsay Hampson, MD, MAS
UCSF Health
San Francisco, CA
(415) 353-2200
Conditions Treated (not intended to be a complete list):
David Ginsberg, MD
Keck Medicine of USC
Los Angeles, CA
(800) USC-CARE
Conditions Treated (not intended to be a complete list):
Dan Wood, PhD, MBBS
UC Health
Aurora, CO
(720) 848-1800
Conditions Treated (not intended to be a complete list):
TELEHEALTH OPTIONS:
Jeremy Myers MD, FACS (See UTAH for full listing)
Nathan M. Shaw MD
MedStar Georgetown University Hospital
Washington, DC
Telehealth: Maryland, Virginia
(202) 444-4922
Conditions Treated (not intended to be a complete list):
Lucas Wiegand MD
Orlando Health
Orlando, FL
(877) 876-3627
Conditions Treated (not intended to be a complete list):
TELEHEALTH OPTIONS:
Brendan Frainey, MD (See TENNESSEE for full listing)
TELEHEALTH OPTIONS:
Jeremy Myers MD, FACS (See UTAH for full listing)
Diana Bowen, MD
Northwestern Medicine
Chicago, IL
(312) 695-8146
Conditions Treated (not intended to be a complete list):
Ranjiv Mathews, MD
SIU Medicine
Springfield, IL
(217) 545-8000
Conditions Treated (not intended to be a complete list):
TELEHEALTH OPTIONS:
Kristin Ebert, MD (See WISCONSIN for full listing)
TELEHEALTH OPTIONS:
Sean Elliott, MD (See MINNESOTA for full listing)
TELEHEALTH OPTIONS:
Brendan Frainey, MD (See TENNESSEE for full listing)
Heather Di Carlo, MD
Johns Hopkins Medicine
Baltimore, MD
(410) 955-6108
Conditions Treated (not intended to be a complete list):
TELEHEALTH OPTIONS:
Nathan M. Shaw, MD (See DISTRICT OF COLUMBIA for full listing)
Sean Elliott, MD
M Health Fairview
Minneapolis, MN
Telehealth: Iowa, North Dakota, South Dakota, Wisconsin
(612) 625-6401
Conditions Treated (not intended to be a complete list):
TELEHEALTH OPTIONS:
Jeremy Myers MD, FACS (See UTAH for full listing)
TELEHEALTH OPTIONS:
Jeremy Myers MD, FACS (See UTAH for full listing)
TELEHEALTH OPTIONS:
Robert Caleb Kovell, MD (See PENNSYLVANIA for full listing)
Brian Inouye, MD
Albany Med Health System
Albany, NY
(518) 262-3341
Conditions Treated (not intended to be a complete list):
Alexandra Rehfuss, MD
Albany Med Health System
Albany, NY
(518) 262-3341
Conditions Treated (not intended to be a complete list):
TELEHEALTH OPTIONS:
Sean Elliott, MD (See MINNESOTA for full listing)
Molly DeWitt-Foy, MD
Cleveland Clinic
Cleveland, OH
(216) 445-0936
Conditions Treated (not intended to be a complete list):
Hadley Wood, MD FACS
Cleveland Clinic
Cleveland, OH
(216) 444-5600
Conditions Treated (not intended to be a complete list):
Shubham Gupta, MD FACS
University Hospitals
Cleveland, OH
(216) 286-8114
Conditions Treated (not intended to be a complete list):
TELEHEALTH OPTIONS:
Kristin Ebert, MD (See WISCONSIN for full listing)
Javier Santiago, MD (See WISCONSIN for full listing)
Bradley Kropp, MD, FAAP, FACS
OKC Kids Urology PLLC
Oklahoma City, OK
Telehealth: Texas
(405) 286-0755
Conditions Treated (not intended to be a complete list):
TELEHEALTH OPTIONS:
Judith Hagedorn, MD, MHS, FACS (See WASHINGTON for full listing)
Robert Caleb Kovell, MD
Penn Medicine
Philadelphia, PA
Telehealth: New Jersey
(800) 789-7366
Conditions Treated (not intended to be a complete list):
TELEHEALTH OPTIONS:
Sean Elliott, MD (See MINNESOTA for full listing)
Melissa Kaufman, MD
Vanderbilt Health
Nashville, TN
(615) 322-2800
Conditions Treated (not intended to be a complete list):
Brendan Frainey, MD
Vanderbilt Health
Nashville, TN
Telehealth: Alabama, Georgia, Kentucky
(615) 936-1060
Conditions Treated (not intended to be a complete list):
TELEHEALTH OPTIONS:
Bradley Kropp, MD, FAAP, FACS (See OKLAHOMA for full listing)
Jeremy Myers, MD, FACS
University of Utah Health
Salt Lake City, UT
Telehealth: Colorado, Idaho, Montana, Nevada, Wyoming
(720) 848-1800
Conditions Treated (not intended to be a complete list):
Kurt McCammon, MD, FACS, FPMRS
Urology of Virginia
Eastern Virginia Medical School
Virginia Beach, VA
(757) 457-5100
Conditions Treated (not intended to be a complete list):
TELEHEALTH OPTIONS:
Nathan M. Shaw, MD (See DISTRICT OF COLUMBIA for full listing)
Judith Hagedorn, MD, MHS
UW Medicine
Seattle, WA
Telehealth: Alaska, Oregon
(206) 520-5000
Conditions Treated (not intended to be a complete list):
Jane L. Miller, MD
UW Medicine
Seattle, WA
(206) 598-4294
Conditions Treated (not intended to be a complete list):
Kristin Ebert, MD
American Family Children’s Hospital
Transitional Urology Clinic
Madison, WI
Telehealth: Illinois, Ohio
(608) 915-0670
Conditions Treated (not intended to be a complete list):
Javier Santiago, MD
UW Health
Madison, WI
Telehealth: Ohio
(608) 263-4757
Conditions Treated (not intended to be a complete list):
TELEHEALTH OPTIONS:
Sean Elliott, MD (See MINNESOTA for full listing)
TELEHEALTH OPTIONS:
Jeremy Myers, MD, FACS (See UTAH for full listing)
This directory is intended as a helpful resource and starting point. Provider availability and experience may vary. Information is subject to change. A-BE-C does not endorse specific providers.
We encourage you to speak directly with providers to determine the best fit for your care.
If you are a provider who would like to be added to this list, we encourage you to reach out and share that information with us.
If you are experiencing delays or are unsure where to start, the A-BE-C team may be able to help guide you. We understand how important it is to find the right care and we are here to support you.