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Tag association for the bladder exstrophy community

24 May

A Life of Lonliness: Mainouna’s Story

“Imagine the feeling of sleeping on a wet bed every night and to wake up very early to clean it and put it on the roof to dry before people wake up.” 

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8 Apr

Missing a Piece of the Puzzle: Khadidja’s Story

Khadidja’s childhood memories are mostly of struggle. She often leaked urine and kids her age always made fun of her. They criticized her for how she walked, and how her thighs never looked as "normal" as theirs.

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7 Mar

Another Chapter in Johnson’s Story

Johnson, now a grown up boy, looks so healthy and energetic. He told me, “he feels pretty fine.” He has not had any health complications for some time now. Johnson is still in school and progressing well, currently in primary three.

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7 Mar

Treasure’s Story Continues

Treasure is now a joyful three-and-a-half year old and currently has no major health challenges. Although she has not been able to be seen in person in the clinic, A-BE-C has been able to care for her remotely through telemedicine.

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