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11 Mar

Honoring a Legacy: Dr. Paul Merguerian Receives the Richard Grady Humanitarian Award

The International Bladder Exstrophy Collaborative (IBEC) gathered for its 18th annual workshop. Amidst the intense focus of world-class surgeons from across the globe, we took a moment to honor a man who has spent his career serving the most vulnerable: Dr. Paul Merguerian.

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29 Dec

A Year of Knowledge, Connection and Care

As 2025 draws to a close, the Association for the Bladder Exstrophy Community (A-BE-C) reflects on a year defined by expanded global reach, strengthened resources, and meaningful community connections. From international collaboration to new tools for patients and families, the past year underscored the importance of empowering individuals through trusted information and supportive networks.

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10 Dec

Strengthening Global Connections for the Bladder Exstrophy Community

The Association for the Bladder Exstrophy Community (A-BE-C) recently joined international support organizations from around the world for the first-ever Global Congress on Advocacy and Community Collaboration—a landmark gathering dedicated to improving care, awareness, and connection for individuals and families affected by bladder exstrophy.

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12 Nov

Introducing the Adult Exstrophy Provider Directory

We are thrilled to share some exciting news that has been months in the making. A-BE-C has officially launched our Adult Provider Directory a first-of-its-kind resource designed to help adults with […]

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16 Oct

Uganda 2025: Building Access to Care Across East Africa

This September, A-BE-C returned to Uganda for our 6th annual surgical workshop at EMERGENCY Children’s Hospital, providing expert surgical care and clinic services for more than 100 children and families from across East Africa.

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