15 Sep
The 2025 Annual Exstrophy Conference was held in Boston, MA and proudly hosted in conjunction with Boston Children’s.
READ MORE28 Oct
The 2024 Annual Exstrophy Conference was held in Milwaukee, WI and proudly hosted in conjunction with Children’s Wisconsin.
READ MORE13 Nov
Realizing that care for the entire patient – beginning with appropriate surgical counseling and preparation, to psychosocial support and postoperative management – is key to successful outcomes, the sessions focused on the challenges patients and families face through a spectrum of discussions and provide tools to show that BE Doesn’t Limit ME!
READ MORE2 Jun
Sessions from the 2015 conference focused on the medical, social, emotional, and practical aspects of living with exstrophy.
READ MORE2 Jun
Sessions from the 2016 conference focused on fertility and sexual health for those with bladder exstrophy, research updates, transitional care, how to advocate for school-age children and more.
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