Johnson - bladder exstrophy

7 Mar

Another Chapter in Johnson’s Story

Johnson, now a grown up boy, looks so healthy and energetic. He told me, “he feels pretty fine.” He has not had any health complications for some time now. Johnson is still in school and progressing well, currently in primary three.

3 Dec

Johnson’s Story

Sadly, the beginning of Johnson’s story is one of many – there are hundreds of children just like him that are feeling hopeless and helpless. Who are suffering without access to care and treatment. And for every child like Johnson, there are parents feeling the anguish of not being able to properly care for their […]

23 Oct

Living with bladder exstrophy in Uganda: Johnson’s story continues

The quality of life for Ugandan bladder exstrophy patient Johnson (Ndyabagye) continues to improve since receiving his first surgery more than two years ago. You may remember first reading about him in 2016 as an untreated bladder exstrophy patient in constant physical pain. After two successful surgeries, last year’s “good news” post reported Johnson was no […]

28 Nov

Seven-year-old Johnson finally gets a chance at healing

At seven, Johnson (Ndyabagye) is old enough to understand that his body is different from those of his two brothers. He is old enough to understand that he cannot use the toilet like other children his age. And he realizes that he will not find relief from his constant physical pain until he receives surgery […]

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Tag Johnson

Another Chapter in Johnson’s Story

Johnson’s Story

Living with bladder exstrophy in Uganda: Johnson’s story continues

Seven-year-old Johnson finally gets a chance at healing

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