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13 Sep

Dr. Joao Luiz Pippi Salle Receives 2024 Humanitarian Award

A-BE-C recently presented its Richard W. Grady Humanitarian Award to Dr. Joao Luiz Pippi Salle, Professor of Urology, SickKids Hospital and Co-Director of the Center for Pelvic Reconstruction.

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8 Sep

Dr. William Reiner Receives 2023 Humanitarian Award

A-BE-C recently presented its Richard W. Grady Humanitarian Award to Dr. William Reiner, Child and Adolescent Psychiatry, Urology. Dr Reiner, a world-renowned Child and Adolescent Psychiatrist, spent his career focused on the psychological aspects of bladder exstrophy. 

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11 Apr

A One-of-a-kind, Worldwide Collaboration

A-BE-C is so proud to be a part of the annual Bladder Exstrophy workshop which celebrated its 15th year in January!!! After two days of extensive discussion and five days of complex surgeries, I can’t thank Civil Hospital enough for their ongoing commitment to our beautiful children and families living with bladder exstrophy.

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1 Feb

Resilience: Overcoming Obstacles to Impact Lives Around the Globe

Anna Artigas, daughter of Executive Director Pamela Artigas, is traveling with A-BE-C for the 2023 International Exstrophy Workshop in Uganda as part of a service project to provide support to teens with exstrophy.

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1 Sep

Dr. John Gearhart Receives 2022 Humanitarian Award

A-BE-C recently presented its Richard W. Grady Humanitarian Award to John P. Gearhart, M.D., Johns Hopkins Professor of Pediatrics and Urology. The distinguished award was presented during the 2022 International Exstrophy Conference in Baltimore, MD.

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22 Jun

The US-India Bladder Exstrophy Collaborative

Since 2009, a team of surgeons, anesthesiologists, social workers, and other healthcare providers from hospitals in India and the U.S. have worked together to help more children in Asia and Africa receive the complex surgery necessary to address bladder exstrophy.

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22 Jun

ARTICLE: Patient-reported outcomes in adult females with bladder exstrophy

An article based on a survey conducted in 2019 by Seattle Children's and A-BE-C regarding adult females with exstrophy and their long-term sexual, reproductive, and urinary outcomes has been published.

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20 Jun

Family Finds Hope and Support at Seattle Children’s

Family shares their story and thankfulness for the A-BE-C community and the team at Seattle Children's.

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29 Aug

Study to be Presented at Societies for Pediatric Urology Fall Meeting

          You may remember a survey conducted earlier this year by Seattle Children’s and A-BE-C regarding adult females with exstrophy and their long-term sexual, reproductive, and urinary […]

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6 Jul

8 U.S. hospitals are best-in-class for bladder exstrophy

The Association for the Bladder Exstrophy Community (A-BE-C) wants to shorten the time it takes families to find complete and effective care for their children born with bladder or cloacal […]

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