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Tag treatment of bladder exstrophy

15 Sep

Now Available: 2025 International Exstrophy Conference Videos

The 2025 Annual Exstrophy Conference was held in Boston, MA and proudly hosted in conjunction with Boston Children’s.

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28 Oct

Now Available: 2024 International Exstrophy Conference Videos

The 2024 Annual Exstrophy Conference was held in Milwaukee, WI and proudly hosted in conjunction with Children’s Wisconsin.

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13 Nov

2023 International Exstrophy Conference Videos

Realizing that care for the entire patient – beginning with appropriate surgical counseling and preparation, to psychosocial support and postoperative management – is key to successful outcomes, the sessions focused on the challenges patients and families face through a spectrum of discussions and provide tools to show that BE Doesn’t Limit ME!  

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17 Jul

El milagro perfecto de Rosina

Rosina comparte la historia de su hija, Fátima, también conocida como "Mily", y su viaje con extrofia cloacal en el Children's Hospital Los Angeles.

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15 Jul

Rosina’s Perfect Miracle

Rosina shares the story of her daughter, Fatima aka “Mily”, and their journey with cloacal exstrophy at Children's Hospital Los Angeles.

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20 Jun

Family Finds Hope and Support at Seattle Children’s

Family shares their story and thankfulness for the A-BE-C community and the team at Seattle Children's.

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2 Jun

Re-Released! 2015 International Exstrophy Conference Videos

Sessions from the 2015 conference focused on the medical, social, emotional, and practical aspects of living with exstrophy.

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24 Oct

Webinar recording – Preparing your Child for Surgery

In this two-part webinar, Dr. Marlo Eldridge shares her deep experience and expertise and offers specific tips and insights to parents and providers.

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