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23 Sep

Expanding Our Reach

Over the past 3 years A-BE-C has helped facilitate surgeries for children with bladder exstrophy in Uganda, and trained Ugandan surgeons in India with the goal to work with Uro Care Hospital to build a medical facility where children can both undergo surgeries and receive follow up treatments. Making an Impact in Uganda The success […]

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29 Aug

Help Us Meet the Challenge

Your gift today will allow us to invest in our Uganda Initiative, which means more lives healed, more lives restored, more lives saved. More children reaching their greatest life purpose and potential.

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27 Nov

Premiering now! New documentary on bladder exstrophy in Uganda

The Uganda Initiative is launching as part of A-BE-C’s work in global care for bladder exstrophy. See how–together–we’re already making an impact in this special preview of our new extraordinary documentary.   [button url=”https://secure.qgiv.com/for/eyx8js” style=”xsmall|small|normal”]Give Today[/button]

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12 Nov

The treatable condition of bladder exstrophy can still be a death sentence in Uganda

When a child in the US is born with bladder exstrophy, it can be both shocking and devastating. With ultrasound technology many parents have already been given the bladder exstrophy diagnosis before birth, but it is still overwhelming for parents to see the defect and be hurdled into a world of surgeries, information and follow […]

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5 Nov

Bladder exstrophy in Uganda: Undying hope and a long journey for treatment

Ibriham was born with bladder exstrophy in northern Uganda. The condition was unfamiliar to local health workers. Though there was nowhere to turn for help, his father never gave up hope on treatment for his son. At great sacrifice, they traveled to hospitals in Uganda, Sudan, and the Congo looking for help before a connection […]

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31 Oct

Bladder exstrophy in Uganda: My story begins with Solomon

My story with exstrophy begins in a small country located in eastern Africa called Uganda. Uganda is commonly referred to as ‘the Pearl of Africa’ given its abundance of natural resources and lush climate. It is a country of approximately 40 million people with over half the population under the age of 15. It is also […]

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23 Oct

Living with bladder exstrophy in Uganda: Johnson’s story continues

The quality of life for Ugandan bladder exstrophy patient Johnson (Ndyabagye) continues to improve since receiving his first surgery more than two years ago. You may remember first reading about him in 2016 as an untreated bladder exstrophy patient in constant physical pain. After two successful surgeries, last year’s “good news” post reported Johnson was no […]

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19 Oct

Living with bladder exstrophy in Uganda: Rachel’s story

A team from A-BE-C, including Executive Director Pamela Block and Board Member Janet Gibson visited several bladder exstrophy patients living in Uganda in September 2018. Pamela Block shares the following reflections. It takes some time to reflect on the enormity of the challenges of life with bladder exstrophy in Uganda. The stories are hard to […]

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25 Apr

Good News From Uganda!

With every bladder exstrophy patient there is a story of resilience and hope.  A new chapter of young Ugandan Ndyabagye Johnson’s story has been written and we are delighted to to share it. You may recall Johnson was featured in a post in November of 2016 (Seven-year-old Ndyabagye finally gets a chance at healing). Back […]

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28 Nov

Seven-year-old Johnson finally gets a chance at healing

At seven, Johnson (Ndyabagye) is old enough to understand that his body is different from those of his two brothers. He is old enough to understand that he cannot use the toilet like other children his age. And he realizes that he will not find relief from his constant physical pain until he receives surgery […]

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