The very entertaining Paul Kerensa recently hosted a funny, relatable, and encouraging show about his journey with exstrophy. The event was live on Facebook, but you can still view it here. Suitable for all ages! About Paul A regular on
A-BE-C has committed to a five year initiative designed to treat under-served children and adults in resource poor countries and extend access to surgical interventions and other treatments through the training of physicians in Uganda. https://www.youtube.com/watch?v=NttC4_3ClmA
The 2016 International Exstrophy Conference was held at The Children’s Hospital at OU Medical Center, in Oklahoma City, OK. Sessions focused on fertility and sexual health for those with bladder exstrophy, research updates, transitional care, how to advocate for school-age
The 2015 International Exstrophy Conference was held at Seattle Children’s in Seattle, WA. Sessions focused on the medical, social, emotional, and practical aspects of living with exstrophy. The footage below was previously only available to A-BE-C subscribers. We are excited
Since 2009, a team of surgeons, anesthesiologists, social workers, and other healthcare providers from hospitals in India and the U.S. have worked together to help more children in Asia and Africa receive the complex surgery necessary to address bladder exstrophy.
The 2024 Annual Exstrophy Conference was held in Milwaukee, WI and proudly hosted in conjunction with Children’s Wisconsin.