At the 2016 International Exstrophy Conference, several young attendees shared their insight and expertise about living with bladder exstrophy. Take a moment to enjoy and absorb their valuable words and wisdom!
A handful of teens with bladder exstrophy were recently recruited to try out a new kind of event: a camping trip with Dr. Bradly Kropp of Cook Children’s and the entire exstrophy team. Based on initial feedback, it’s destined to
Congratulations and big thank you to all involved in this year’s BE Extraordinary 3-on-3 Basketball Tournament! A special thanks to Brandi McSwain, one of the organizers who shares these highlights: A day of celebrating of kids with bladder exstrophy and raising
A conference for the whole family! 6pm Thursday, June 7 – 4pm Saturday, June 9 “Whole Health” is the theme of the 2018 International Exstrophy Conference. You’ll find sessions and activities that foster emotional, mental and physical health at every
With every bladder exstrophy patient there is a story of resilience and hope. A new chapter of young Ugandan Ndyabagye Johnson’s story has been written and we are delighted to to share it. You may recall Johnson was featured in
Those who knew the late Dr. Richard W. Grady understand his unwavering commitment to children and families affected by bladder exstrophy. His global humanitarian work helped to elevate the standards of care for children born with this rare medical condition,