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Tag Emily Haddad

12 Sep

Building Community: Empowering Families Around the World

We are committed to creating a self-sustaining bladder exstrophy community in Sub-Saharan Africa. On our upcoming Family Education Day, over 50 families from Uganda, South Sudan, and Burundi will come together with our Global Care team for a day focused on education, empowerment, and connection.

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22 Nov

Back to Uganda

The A-Be-C Uganda initiative continues to grow with each passing year. This October, A-BE-C was represented by a dedicated team of surgeons, nurses, a social worker, and patient advocates.

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11 Apr

Worth the Wait

After two years of delays due to Covid, and then another delay due to an Ebola outbreak in Uganda, the US team was finally able to hold our second workshop at Uro Care in Kampala. Our committed team treated, connected with and supported 23 families from all over Uganda.

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2 May

How to Talk About Bladder Exstrophy – Free Webinar Recording

[vc_row row_container=”no_container”][vc_column][vc_column_text]While advances have been made in surgical approaches to the management of exstrophy, less is known about the psychosocial development and adjustment particularly as children and their family’s progress […]

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1 Apr

Poster Presentation: The Uganda Exstrophy-Epispadias Complex Initiative

Developing a Program for Transference of Complex Surgical Reconstructive Skills

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24 Oct

Mental health providers join A-BE-C’s board of advisors

We are pleased to announce that three mental health providers have joined the advisory board of the Association for the Bladder Exstrophy Community (A-BE-C). All three specialize in pediatric urology […]

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