We are committed to creating a self-sustaining bladder exstrophy community in Sub-Saharan Africa. On our upcoming Family Education Day, over 50 families from Uganda, South Sudan, and Burundi will come together with our Global Care team for a day focused on education, empowerment, and connection.
Caring for exstrophy alone can feel overwhelming, even isolating, but we are here to change that. Our goal is to build a supportive network where families no longer feel alone but instead are strengthened by a community that understands their journey.
Families attending the Uganda Family Day will receive education on exstrophy, self-advocacy, and how to nurture independence for themselves and their loved ones. Knowledge is key in overcoming challenges, and we aim to equip every participant with the tools they need.
Local families will share their experiences, offering encouragement and inspiration. These shared stories will help empower families to face the future with confidence and hope.
Creative therapy will be offered to build strong bonds and a sense of belonging among patients and their families. Music and art not only provide healing but also foster community connections that last.
We need your help to make this day a success. Your donation will provide:
Each family needs $250 to attend this life-changing day, and with over 50 families expected to join, we aim to raise $12,500. Every contribution, no matter how small, will help us move closer to building a thriving, connected BE community in Sub-Saharan Africa.
With your support, we can create a lasting impact, empowering families to face BE with confidence and care, and ultimately transforming lives. Let’s build this community—one family at a time.
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