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Tag bladder exstrophy

11 Mar

Honoring a Legacy: Dr. Paul Merguerian Receives the Richard Grady Humanitarian Award

The International Bladder Exstrophy Collaborative (IBEC) gathered for its 18th annual workshop. Amidst the intense focus of world-class surgeons from across the globe, we took a moment to honor a man who has spent his career serving the most vulnerable: Dr. Paul Merguerian.

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29 Dec

A Year of Knowledge, Connection and Care

As 2025 draws to a close, the Association for the Bladder Exstrophy Community (A-BE-C) reflects on a year defined by expanded global reach, strengthened resources, and meaningful community connections. From international collaboration to new tools for patients and families, the past year underscored the importance of empowering individuals through trusted information and supportive networks.

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10 Dec

Strengthening Global Connections for the Bladder Exstrophy Community

The Association for the Bladder Exstrophy Community (A-BE-C) recently joined international support organizations from around the world for the first-ever Global Congress on Advocacy and Community Collaboration—a landmark gathering dedicated to improving care, awareness, and connection for individuals and families affected by bladder exstrophy.

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12 Nov

Introducing the Adult Exstrophy Provider Directory

We are thrilled to share some exciting news that has been months in the making. A-BE-C has officially launched our Adult Provider Directory a first-of-its-kind resource designed to help adults with […]

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16 Oct

Uganda 2025: Building Access to Care Across East Africa

This September, A-BE-C returned to Uganda for our 6th annual surgical workshop at EMERGENCY Children’s Hospital, providing expert surgical care and clinic services for more than 100 children and families from across East Africa.

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1 Oct

Dr. Joseph Borer Honored with the 2025 Richard W. Grady Humanitarian Award

We are proud to celebrate Dr. Joseph Borer, a world-renowned pediatric urologist and surgeon, as the recipient of this year’s Richard W. Grady Humanitarian Award which was recently presented by Dr. Evalynn Vasquez at the A-BE-C Annual Exstrophy Conference. This recognition reflects not only his extraordinary contributions to the field of urology, but also the compassion, dedication, and humility he brings to every patient and family he serves.

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15 Sep

Now Available: 2025 International Exstrophy Conference Videos

The 2025 Annual Exstrophy Conference was held in Boston, MA and proudly hosted in conjunction with Boston Children’s.

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28 Jul

2025 Courage to Shine Award: George Hunt III

George Hunt III received the 2025 Courage to Shine award at the International Exstrophy Conference in Boston, MA.

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2 Jul

One Act of Kindness Can Change Everything

Since 2019, A-BE-C has deepened its commitment to children with bladder exstrophy in Uganda with the A-BE-C Uganda Initiative, a team of passionate surgeons, nurses, and social workers who travel to Uganda each year. These volunteers pay their own way, leave their families behind, and work alongside Ugandan medical professionals to perform surgeries, provide training, and build sustainable local expertise.

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24 Apr

Raising Our Voices in Washington: A-BE-C at the AUA Advocacy Summit

A-BE-C proudly took part in the AUA Advocacy Summit in Washington, D.C.—a powerful event that brings together urologists, patient advocates, and policy makers to influence healthcare legislation and elevate the needs of the urologic patient community.

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