Tag bladder exstrophy

25 Feb

Uniting the World’s Brightest Minds: The 2025 IBEC Conference at CIVIL Hospital

Imagine a room filled with 51 of the world’s top pediatric urology specialists, all gathered with a single mission—to transform the lives of children born with bladder exstrophy. That’s exactly what happened at CIVIL Hospital, as it proudly hosted the 2025 International Bladder Exstrophy Collaborative (IBEC) Conference!

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19 Nov

Mission Accomplished in Uganda

This was our 5th trip to Uganda, and while every year leaves us feeling blessed, accomplished, exhausted, fulfilled, and yes, even stressed, this year was different.

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28 Oct

Now Available: 2024 International Exstrophy Conference Videos

The 2024 Annual Exstrophy Conference was held in Milwaukee, WI and proudly hosted in conjunction with Children’s Wisconsin.

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13 Sep

Dr. Joao Luiz Pippi Salle Receives 2024 Humanitarian Award

A-BE-C recently presented its Richard W. Grady Humanitarian Award to Dr. Joao Luiz Pippi Salle, Professor of Urology, SickKids Hospital and Co-Director of the Center for Pelvic Reconstruction.

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12 Sep

Building Community: Empowering Families Around the World

We are committed to creating a self-sustaining bladder exstrophy community in Sub-Saharan Africa. On our upcoming Family Education Day, over 50 families from Uganda, South Sudan, and Burundi will come together with our Global Care team for a day focused on education, empowerment, and connection.

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13 Aug

Rachel Althizer Receives the 2024 Courage to Shine Award

Rachel Althizer, 32, received the 2024 Courage to Shine award at the International Conference in Milwaukee, WI.

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22 Nov

Back to Uganda

The A-Be-C Uganda initiative continues to grow with each passing year. This October, A-BE-C was represented by a dedicated team of surgeons, nurses, a social worker, and patient advocates.

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13 Nov

2023 International Exstrophy Conference Videos

Realizing that care for the entire patient – beginning with appropriate surgical counseling and preparation, to psychosocial support and postoperative management – is key to successful outcomes, the sessions focused on the challenges patients and families face through a spectrum of discussions and provide tools to show that BE Doesn’t Limit ME!  

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8 Sep

Dr. William Reiner Receives 2023 Humanitarian Award

A-BE-C recently presented its Richard W. Grady Humanitarian Award to Dr. William Reiner, Child and Adolescent Psychiatry, Urology. Dr Reiner, a world-renowned Child and Adolescent Psychiatrist, spent his career focused on the psychological aspects of bladder exstrophy. 

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24 Jul

Bravery in the Face of the Unknown

Like many of yours, our story is one of Acceptance of our son's diagnosis, Bravery in the face of the unknown, Empathy for one another, Courage instead of fear, and Faith in God's plan.

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