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Tag bladder exstrophy

28 Nov

Seven-year-old Johnson finally gets a chance at healing

At seven, Johnson (Ndyabagye) is old enough to understand that his body is different from those of his two brothers. He is old enough to understand that he cannot use […]

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24 Oct

Mental health providers join A-BE-C’s board of advisors

We are pleased to announce that three mental health providers have joined the advisory board of the Association for the Bladder Exstrophy Community (A-BE-C). All three specialize in pediatric urology […]

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10 Aug

Failed Primary Exstrophy Closure Webinar Recording

Dr. Gearhart provides details about what makes a successful primary exstrophy closure, why some closures fail, how to prevent failed closures, the types of failures and the treatment of failed closures. 

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22 Jun

Webinar: Long Term Management of Bladder Exstrophy

Dr. Paul Merguerian discusses the management and long term outcomes of children with bladder exstrophy and epispadias, the initial management of pelvic osteotomies, and the goals of long-term management.

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10 May

Webinar: Exploring the Gene Mutation Discovery

Dr. Heiko Reutter is a world renown researcher in the field of pediatrics and human genetics. In this webinar Dr. Reutter will share his research and insights on the discovery of a genetic mutation associated with bladder exstrophy.

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24 Oct

Webinar recording – Preparing your Child for Surgery

In this two-part webinar, Dr. Marlo Eldridge shares her deep experience and expertise and offers specific tips and insights to parents and providers.

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