Our Faces of BE book, a photo book showcasing individuals with exstrophy from around the world, is now available for purchase! In 2018, on a trip to Uganda to serve […]
Dr. Tony Khoury Chief of Pediatric Urology at both Children’s Hospital of Orange County (CHOC) Children’s Urology Center and the University of California-Irvine Medical Center, provides this helpful overview of the […]
Bladder Cancer: Facts for bladder exstrophy patients
Understanding the facts about the risks of bladder cancer and how to reduce them are important topics for bladder exstrophy patients and their families. As part of Bladder Health Month, […]
Urinary tract infections (UTIs) in bladder exstrophy patients
People with bladder exstrophy are at greater risk for developing urinary tract infections. (UTIs). As part of Bladder Health Month, Dr. Ranjiv Mathews, Director of Pediatric Urology and Professor at SIU […]
Living with bladder exstrophy in Uganda: Johnson’s story continues
The quality of life for Ugandan bladder exstrophy patient Johnson (Ndyabagye) continues to improve since receiving his first surgery more than two years ago. You may remember first reading about […]
8 U.S. hospitals are best-in-class for bladder exstrophy
The Association for the Bladder Exstrophy Community (A-BE-C) wants to shorten the time it takes families to find complete and effective care for their children born with bladder or cloacal […]
At the 2016 International Exstrophy Conference, several young attendees shared their insight and expertise about living with bladder exstrophy. Take a moment to enjoy and absorb their valuable words and wisdom!
Teens give Dr. Kropp’s first Camp BElieve for bladder exstrophy a thumbs-up!
A handful of teens with bladder exstrophy were recently recruited to try out a new kind of event: a camping trip with Dr. Bradly Kropp of Cook Children’s and the […]
Nearly 100 exstrophy patients receive treatment in Ahmedabad, India
The 9th annual Operative Workshop on Exstrophy and Epispadias Complex got underway just after the first of the year in Ahmedabad, India. Nearly 100 exstrophy patients received treatment from an international team […]
