bladder exstrophy - bladder exstrophy

2 Aug

That’s a Wrap! CHLA Creates a Memorable Experience at 2019 International Exstrophy Conference

The 2019 International Exstrophy Conference was a huge success, mostly due to the dedication and planning of the team at Children’s Hospital Los Angeles. Our heartfelt thanks goes out to the CHLA team for orchestrating a well organized, insightful event. It was a great experience for all attendees! Highlights of the weekend Highlights included sessions […]

23 May

The 11th Annual Workshop in Ahmedabad, India Was a Resounding Success

The 11th annual workshop in Ahmedabad, India Was a resounding success thanks to a dedicated international collaboration of medical experts. For the 5th year, A-BE-C was among the visiting team of 27 pediatric surgeons, nephrologists, anesthesiologists, nurses, social workers, and researchers united in the shared passion for the treating the humbling condition of bladder exstrophy. A-BE-C […]

22 May

A-BE-C Elects Dr. Paul Merguerian as Advisory Board Chair

A-BE-C recently elected Dr. Paul Merguerian to a two year term as Advisory Board Chair. Our board helps to shape and guide the strategy of the organization and is vital to the success of our mission: To make the highest standards of treatment, care and support within reach of all people affected by bladder exstrophy.

20 May

Third Annual 3-on-3 Basketball Tournament Surpasses Goal

Participants and supporters at the 3-on-3 Basketball Tournament hosted by the Texas Bladder Exstrophy Group The 3rd Annual BE Extraordinary 3-on-3 Basketball Tournament was once again a huge success. Hundreds of supporters, players and volunteers came out to raise money for this rare condition and support individuals with exstrophy. Cook Children’s Pediatric Urology has A-Peel! […]

13 May

Center of Excellence Added to Distinguished List

A-BE-C is excited to announce the addition of Ann & Robert H. Lurie Children’s Hospital of Chicago to its prestigious list of Centers of Excellence. Association for the Bladder Exstrophy Community (A- BE-C) is pleased to add Ann & Robert H. Lurie Children’s Hospital of Chicago to its prestigious list of Centers of Excellence. A-BE-C’s Centers […]

6 May

A-BE-C is Excited to Announce Newest Additions to Advisory Board

A-BE-C is excited to announce the addition of Dr. Evalynn Vasquez and Misty Blue Foster to its Advisory Board. Our board helps to shape and guide the strategy of the organization and is vital to the success of our mission: To make the highest standards of treatment, care and support within reach of all […]

3 May

Faces of BE Photo Book Now Available!

Our Faces of BE book, a photo book showcasing individuals with exstrophy from around the world, is now available for purchase! In 2018, on a trip to Uganda to serve children and families with exstrophy, Executive Director Pamela (Block) Artigas, realized that many of the children she met had never seen another person with exstrophy. […]

1 Apr

Poster Presentation: The Uganda Exstrophy-Epispadias Complex Initiative

Developing a Program for Transference of Complex Surgical Reconstructive Skills

19 Nov

Urinary continence with bladder exstrophy

Dr. Tony Khoury Chief of Pediatric Urology at both Children’s Hospital of Orange County (CHOC) Children’s Urology Center and the University of California-Irvine Medical Center, provides this helpful overview of the factors involved in urinary continence in children with bladder exstrophy. “100 percent dryness is critical and achievable in every one of our bladder exstrophy patients.” […]

14 Nov

Bladder Cancer: Facts for bladder exstrophy patients

Understanding the facts about the risks of bladder cancer and how to reduce them are important topics for bladder exstrophy patients and their families. As part of Bladder Health Month, Dr. John V. Kryger talked with A-BE-C’s Pamela Artigas to help clarify the facts and provide recommendations to the A-BE-C community. https://www.youtube.com/watch?v=GgAX9oVeSbE

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Tag bladder exstrophy

That’s a Wrap! CHLA Creates a Memorable Experience at 2019 International Exstrophy Conference

The 11th Annual Workshop in Ahmedabad, India Was a Resounding Success

A-BE-C Elects Dr. Paul Merguerian as Advisory Board Chair

Third Annual 3-on-3 Basketball Tournament Surpasses Goal

Center of Excellence Added to Distinguished List

A-BE-C is Excited to Announce Newest Additions to Advisory Board

Faces of BE Photo Book Now Available!

Poster Presentation: The Uganda Exstrophy-Epispadias Complex Initiative

Urinary continence with bladder exstrophy

Bladder Cancer: Facts for bladder exstrophy patients

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