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Tag bladder exstrophy

2 May

How to Talk About Bladder Exstrophy – Free Webinar Recording

[vc_row row_container=”no_container”][vc_column][vc_column_text]While advances have been made in surgical approaches to the management of exstrophy, less is known about the psychosocial development and adjustment particularly as children and their family’s progress […]

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29 Apr

Comedian Paul Kerensa Shares Exstrophy Experience

The very entertaining Paul Kerensa recently hosted a funny, relatable, and encouraging show about his journey with exstrophy. The event was live on Facebook, but you can still view it here. Suitable for all ages!

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27 Mar

Persis Makes it Home Safely Amidst Pandemic

A-BE-C traveled to Ahmedabad, India for the 12th Annual Operative Workshop on BE. Here is an update on Persis who received closure surgery at the workshop.

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20 Feb

2019 Conference Videos Now Available!

Couldn't make it to the 2019 Conference? Sessions on coping with exstrophy now available!

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3 Dec

Johnson’s Story

Sadly, the beginning of Johnson’s story is one of many – there are hundreds of children just like him that are feeling hopeless and helpless. Who are suffering without access […]

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16 Nov

A Father’s Plea Leads To Worldwide Support

Four-year-old Khushbakht of Pakistan underwent her first successful bladder exstrophy repair and pelvic osteotomy in Doha, Qatar. Her journey to effective treatment was prompted by a heartfelt plea from her father to A-BE-C, which lead to worldwide support.

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23 Sep

Expanding Our Reach

Over the past 3 years A-BE-C has helped facilitate surgeries for children with bladder exstrophy in Uganda, and trained Ugandan surgeons in India with the goal to work with Uro […]

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30 Aug

Study to be Presented at Societies for Pediatric Urology Fall Meeting

          You may remember a survey conducted earlier this year by Seattle Children’s and A-BE-C regarding adult females with exstrophy and their long-term sexual, reproductive, and urinary […]

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29 Aug

Help Us Meet the Challenge

Your gift today will allow us to invest in our Uganda Initiative, which means more lives healed, more lives restored, more lives saved. More children reaching their greatest life purpose and potential.

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20 Aug

Briten Douglas – Survivor and 2019 Courage to Shine Award Recipient

Briten Douglas is this year’s recipient of the Courage to Shine award, setting an example with her perseverance and positive attitude throughout countless years of pain and adversity. Briten was presented […]

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