Blogs

Johnson | A-BE-C | bladder exstrophy

Another Chapter in Johnson’s Story

Johnson, now a grown up boy, looks so healthy and energetic. He told me, “he feels pretty fine.” He has not had any health complications for some time now. Johnson is still in school and progressing well, currently in primary three.

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Treausre | Association for the Bladder Exstrophy Community

Treasure’s Story Continues

Treasure is now a joyful three-and-a-half year old and currently has no major health challenges. Although she has not been able to be seen in person in the clinic, A-BE-C has been able to care for her remotely through telemedicine.

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Alves to India | ABEC

Alves to India

Late in the day at a makeshift ‘medical mission’ clinic in the Bahamas as the doors were closing for the day, a family hesitantly knocked on the door. Judging by the looks on their faces, the volunteer nurses knew they were desperate for help. Avles, an adorable five year old boy stood before them – they could smell him before they met him. Alves’ father, Lucner, out of desperation and faith asked if they would see his child, not really expecting they could do anything.

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Keep On Keeping On

We recently had the rare opportunity to get some words of wisdom from Australian, Tom Flood, who was born in 1930 with bladder exstrophy. In those days, very little was known about bladder exstrophy and no treatment options were available. His parents were told that Tom was not expected to survive and if he was not in pain, just to leave things as are. But Tom had other plans! 

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