Since 2009, a team of surgeons, anesthesiologists, social workers, and other healthcare providers from hospitals in India and the U.S. have worked together to help more children in Asia and Africa receive the complex surgery necessary to address bladder exstrophy.
Family shares their story and thankfulness for the A-BE-C community and the team at Seattle Children’s.
The 2016 International Exstrophy Conference was held at The Children’s Hospital at OU Medical Center, in Oklahoma City, OK. Sessions focused on fertility and sexual health for those with bladder exstrophy, research updates, transitional care, how to advocate for school-age
The 2015 International Exstrophy Conference was held at Seattle Children’s in Seattle, WA. Sessions focused on the medical, social, emotional, and practical aspects of living with exstrophy. The footage below was previously only available to A-BE-C subscribers. We are excited
[vc_row row_container=”no_container”][vc_column][vc_column_text]While advances have been made in surgical approaches to the management of exstrophy, less is known about the psychosocial development and adjustment particularly as children and their family’s progress to childhood and adolescence. One of key issues that many
While advances have been made in surgical approaches to the management of exstrophy, less is known about the psychosocial development and adjustment particularly as children and their family’s progress to childhood and adolescence. One of key issues that many parents