Check out the video from our virtual back to school conference, where we discussed back to school concerns for BE kids and families, talk about Covid related issues, and provide tips for bathroom procedures.
A-BE-C recently held its first virtual conference via Zoom! Dr. Elizabeth R. Mueller, Loyola University Chicago Stritch School of Medicine, kicked off the event by discussing research findings that suggest a lack of bladder health education in school systems, which
Rosina comparte la historia de su hija, Fátima, también conocida como “Mily”, y su viaje con extrofia cloacal en el Children’s Hospital Los Angeles.
Rosina shares the story of her daughter, Fatima aka “Mily”, and their journey with cloacal exstrophy at Children’s Hospital Los Angeles.
We have been amazed at our ability as humans to pivot as our reality changed. We have learned about and adapted to this “new normal.” The outpouring of volunteerism that I have seen on our team has been impressive.
An article based on a survey conducted in 2019 by Seattle Children’s and A-BE-C regarding adult females with exstrophy and their long-term sexual, reproductive, and urinary outcomes has been published.